Tuesday, October 6, 2009

Olivia


On September 11th, Olivia was admitted into The Children's Hospital in Denver. Although initially thought to have an infection of some kind, we learned that she was overloaded with fluids and was struggling to blow off the CO2 in her lungs causing her to be in respiratory distress. About two weeks ago, an echocardiogram was taken of Liv's heart, and the cardiologist noticed a narrowing of some of her main vessels. This past Friday, Liv underwent a cardiac catheterization to look at her heart and vessels. So sadly we heard something we didn't ever want to hear. Olivia has a rare cardiac condition called Pulmonary Vein Stenosis. It is a condition in which her pulmonary veins, which carry oxygenated blood from her lungs to her heart, have an abnormal growth of cells which are obstructing the blood flow. While the cardiologist was able to dilate her veins a little, the cells will continue to regrow and continue blocking her bloodflow. The cardiologist said that the cell recurrence is typically very aggressive, and that there is no cure. Liv's prognosis is not good.


We are praying and preparing for Olivia to come home in the next couple weeks. We are so excited for that day to come.


Our situation is difficult because we have no legal say in Olivia's medical care, or any planning for her future. These important medical decisions will be made by either her biological mother, whose rights have not yet been terminated, or by the Department of Human Services.


These are our prayers. That Olivia will be kept comfortable, and that whatever time we have left with her will be filled with happiness and joy. That our family will lean on God, and not lose sight of the many blessings He has given to us. We pray for Shon and Cory, Liv's biological brothers, who will suffer yet another loss in their young lives. Prayer for Shon, Cory, and Liv's bio mom, who too, will suffer another loss. We pray for Lauren, Payton, Maggie, and Faith and that they will feel God's arms of love surrounding them, and that they will not be afraid to love others.


We are praying for a miracle, but realize that our plans are not always Gods. Thank you for your prayers throughout this amazing time in our lives. We thank God for you!

2 comments:

  1. Misty-
    You know that you and the family are in my prayers! Olivia is so blessed to have your family to love her! Take care of yourself and know that you are all loved.
    Love-
    Heidi

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  2. Oh Misty...my heart is breaking for you and your family. I thank God that Olivia has you to love and care for her. I will keep you guys in my prayers.

    Cheri

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